Research Activities

Research Activities

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Principal Investigators

Uehiro Research Div. for iPS Cell Ethics 
Jusaku Minari (Associate Professor)

Publications

J. Minari, N. Shinomiya, K. Takashima, and G. Yoshizawa.

Contiguous governance of synchronic and diachronic changes for the use of genome editing technologies. Frontiers in Political Science. 4(825496), 2022.

R. Milne, KI. Morley, MA. Almarri, J. Atutornu, EE. Baranova, P. Bevan, M. Cerezo, Y. Cong, A. Costa, C. Feijao, C. De Freitas, J. Fernow, P. Goodhand, Q. Hasan, A. Hibino, G. Houeland, HC. Howard, SZ. Hussain, CI. Malmgren, VL. Izhevskaya, A. Jędrzejak, C. Jinhong, M. Kimura, E. Kleiderman, K. Liu, D. Mascalzoni, Á. Mendes, J. Minari, D. Nicol, E. Niemiec, C. Patch, B. Prainsack, M. Rivière, L. Robarts, J. Roberts, V. Romano, HA. Sheerah, J. Smith, A. Soulier, C. Steed, V. Stefànsdóttir, C. Tandre, A. Thorogood, TH. Voigt, N. Wang, G. Yoshizawa, and A. Middleton.

Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries. Genetics in Medicine. 2022.

J. Minari, M. Yokono, K. Takashima, M. Kokado, R. Ida, and Y. Hishiyama.

Looking back: three key lessons from 20 years of shaping Japanese genome research regulations. Journal of Human Genetics (Perspective), 2021.

K. Takashima, M. Morrison, and J. Minari.

Reflection on the enactment and impact of safety laws for regenerative medicine in Japan. Stem Cell Reports (Perspective), 16: 6. 2021.

R. Milne, KI. Morley, MA. Almarri, S. Anwer, J. Atutornu, EE. Baranova, P. Bevan, M. Cerezo, Y. Cong, A. Costa, C. Critchley, J. Fernow, P. Goodhand, Q. Hasan, A. Hibino, G. Houeland, HC. Howard, SZ. Hussain, CI. Malmgren, VL. Izhevskaya, A. Jędrzejak, C. Jinhong, M. Kimura, E. Kleiderman, B. Leach, K. Liu, D. Mascalzoni, Á. Mendes, J. Minari, D. Nicol, E. Niemiec, C. Patch, J. Pollard, B. Prainsack, M. Rivière, L. Robarts, J. Roberts, V. Romano, HA. Sheerah, J. Smith, A. Soulier, C. Steed, V. Stefànsdóttir, C. Tandre, A. Thorogood, TH. Voigt, N. Wang, AV. West, G. Yoshizawa, and A. Middleton.

Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries. Genome Medicine, 13: 92. 2021.

J. Minari.

Genomics and society. BIO Clinica, Vol. 36, pp 51-55, 2021 (in Japanese).

K. Mikami, A. Ema, J. Minari, and G. Yoshizawa.

ELSI is our next battlefield. East Asian Science, Technology and Society: An International Journal, Vol. 15, pp 86-96, 2021.

J. Minari, G. Yoshizawa, and N. Shinomiya.

COVID-19 and the boundaries of open science and innovation: lesson of traceability from genomic data sharing and biosecurity. EMBO reports. e51773. 2020.

A. Middleton, R. Milne, MA. Almarri, S. Anwer, J. Atutornu, EE. Baranova, P. Bevan, M. Cerezo, Y. Cong, C. Critchley, J. Fernow, P. Goodhand, Q. Hasan, A. Hibino, G. Houeland, HC. Howard, SZ. Hussain, CI. Malmgren, VL. Izhevskaya, A. Jędrzejak, C. Jinhong, M. Kimura, E. Kleiderman, B. Leach, K. Liu, D. Mascalzoni, A. Mendes, J. Minari, N. Wang, D. Nicol, E. Niemiec, C. Patch, J. Pollard, B. Prainsack, M. Rivière, L. Robarts, J. Roberts, V. Romano, HA. Sheerah, J. Smith, A. Soulier, C. Steed, V. Stefànsdóttir, C. Tandre, A. Thorogood, TH. Voigt, AV. West, G. Yoshizawa, and KI. Morley.

Global public perceptions of genomic data sharing: what shapes the willingness to donate DNA and health data? The American Journal of Human Genetics, Vol. 107, pp 743-752, 2020.

M. Prictor, MA. Lewis, AJ. Newson, M. Haas, S. Baba, H. Kim, M. Kokado, J. Minari, F. Molnár-Gábor, B. Yamamoto, J. Kaye and HJA. Teare.

Dynamic consent: an evaluation and reporting framework. Journal of Empirical Research on Human Research Ethics, Vol. 15, pp 175-186, 2020.

G. Yoshizawa, and J. Minari.

Next nature and next generations: dialogue at Sakushima, Sadogashima and Teshima. Islands, Vol. 261, pp 68-75, 2020 (in Japanese).

A. Hibino, G. Yoshizawa and J. Minari.

Meaning of ambiguity: a Japanese survey on synthetic biology and genome editing. Frontiers in Sociology, 4:81, 2019.

Y. Hishiyama, J. Minari and N Suganuma.

The survey of public perception and general knowledge of genomic research and medicine in Japan conducted by the Japan Agency for Medical Research and Development. Journal of Human Genetics, Vol. 64, pp 397-407, 2019.

J. Minari, K. B. Brothers and M. Morrison.

Tensions in ethics and policy created by National Precision Medicine Programs. Human Genomics (Opinion Article), 12:22, 2018.

J. Minari, O. Kato, M. Sakurai and A. Saito.

The novel approach of AMED in realizing genomic medicine: the process of achieving the AMED data sharing policy. Idenshi Igaku MOOK, Vol. 33, pp 168-172, 2018 (in Japanese).

J. Kaye, S. F. Terry, E. Juengst, S. Coy, J. R. Harris, D. Chalmers, E. S. Dove, I. Budin-Ljosne, C. Adebamowo, E. Ogbe, L. Bezuidenhout, M. Morrison, J. T. Minion, M. J. Murtagh, J. Minari, H. Teare,
R. Isasi, K. Kato, E. Rial-Sebbag, P. Marshall, B. Koenig and A.Cambon-Thomsen.

Including all voices in international data-sharing governance. Human Genomics (Opinion Article), 12:13, 2018.

J. Minari.

Island lessons: inheritance, solidarity, creativity (Considerations of islands, science and technologies and art). Islands, Vol. 253, pp 56-59, 2018 (in Japanese).

J. Minari and G. Yoshizawa.

Ethics policy and public engagement in biomedical research on genomic information. Journal of Medicine, Life and Ethics, Society, Vol. 14, pp 52-60, 2017 (in Japanese).

V. Coathup, H. Teare, J. Minari, G. Yoshizawa, J. Kaye, M. Takahashi and K. Kato.

Using digital technologies to engage with medical research: views of myotonic dystrophy patients in Japan. BMC Medical Ethics, 17:51, 2016.

D. Chalmers, D. Nicol, J. Kaye, J. Bell, A. V. Campbell, C. W. Ho, K. Kato, J. Minari, C. H. Ho, C. Mitchell, F. Molnár-Gábor, M. Otlowski, D. Thiel, S. M. Fullerton and T. Whitton.

Has the biobank bubble burst? Withstanding the challenges for sustainable biobanking in the digital era. BMC Medical Ethics (Review), 17:39, 2016.

J. Minari.

Genomic data sharing in the personal genome era: data sharing policy and ethical considerations. Journal of Medicine, Life and Ethics, Society, Vol. 12, pp 105-114, 2015 (in Japanese).

J. Minari, H. Teare, C. Mitchell, J. Kaye and K. Kato.

The emerging need for family-centric initiatives for obtaining consent in personal genome research. Genome Medicine (Comment), 6:118, 2014.

J. Minari, D. Chalmers and K. Kato.

Return of genetic research results: the Japanese experience and its implications for the international debate. SCRIPTed (Analysis), Vol. 11, pp 180-192, 2014.

G. Yoshizawa, C. W. Ho, W. Zhu, C. Hu, Y. Syukriani, I. Lee, H. Kim, D. F. Tsai, J. Minari and K. Kato.

ELSI practices in genomic research in East Asia: implications for research collaboration and public participation. Genome Medicine (Review), 6:39, 2014.

J. Minari, T. Shirai and K. Kato.

Ethical considerations of research policy for personal genome analysis: the approach of the Genome Science Project in Japan. Life Sciences, Society and Policy, 10:4, 2014.

J. Minari and K. Kato.

Research governance in the personal genome era. Medicine and Drug Journal, Vol. 50, pp 55-58, 2014 (in Japanese).
Books

J. Minari.

Genomic medicine in Bioethics: inheritance and development. ed. M. Maruyama (Kawashima Shoten, 2018) (in Japanese).
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